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Old Thu Oct 2, 2014, 08:54 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Couple of things to keep in mind. It's very difficult for any on the blood lines to improve when fighting infections. Fevers chew through platelets and red cells. And any white cells will have been called to the areas of infection/inflammation with very little left in the blood. All of this, plus the meds, are taxing on the bone marrow.

John went 84 days without a white count. He too was on all the "anti" meds. As soon as his ANC hit .300, they would pull one med at a time. If he did not spike a fever they kept going. If he got a fever, they would resume the med.

At this point, he was on G-CSF (neupogen).

Keep an eye out for GI problems, specifically, very smelly stools. Could indicate a C-Diff infection which can happen being on the other meds.

Lastly, good sources of protein will help build the body back up and start off with mild exercise. If he's on Danazol, that may help too.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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