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Old Wed Oct 22, 2014, 04:06 PM
Alcof Alcof is offline
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Join Date: Aug 2014
Location: New Zealand
Posts: 22
The horrible world of surviving neutropenia

Its really tough staying optimistic. No movement in bloods across the board. And we are fighting infections, in and out of hospital. Near death so many times that we have to ask how often can he come back? Its the repeated flare ups of the ESBL and their friends that do the damage. And we are in week 8 of Eltrombopag and praying for a miracle to happen. Its a battle between the blood recovery clock and the antibiotic resistant bugs.

The neutrophil count is 0.05....so zero. Consistently. Never changing. Only the Hb and platelets change as they fall between transfusions.

I struggle to avoid the question what if. What if eltrombopag doesn't work? What then?

Such a cruel condition as Dad fully comes back in between bouts and he seems next to normal for a day or two. And then the doctors remind us that he has little or no hope. To say they aren't optimistic is an understatement.

Anyhow, we keep praying and hoping and making the trips to the hospital and not sleeping. Its far more unpleasant for Dad.

Keep the fingers and toes crossed for us...
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Father 72 has been diagnosed VSAA June 2014, was on cyclosporine as first treatment 06/2014 - 09/2014. 8 weeks after diagnosis doctor believe he would not survive ATG Treatment. GCSF 3 weeks Aug 2014 Currently on Eltrombopag 09/14 Danazol 25/08/14.
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