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Thanks for that Birgitta.
I was aware of the content of the article but not the stats.
There is also an abstract in one of the neuro journals which gives some hope in regards neuro progression. A recent study has shown that in patients who have had a previous treated copper deficiency and they become copper deficient again, they don't necessarily have a further neuro deterioration. This is what I'm grasping onto at the moment.
I have also read an article somewhere that has found a small number of patients with idiopathic hyperzincaemia and hypocupraemia. This is the category that I fall into and which they think is associated with the del 15q.
I saw a clinical trial somewhere (US, I think) that was focused on copper deficiency causes and treatments. I remember reading some of the criteria and I didn't qualify so I didn't read the whole article.
Regards
Chirley
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