Hi, I have not been on the forum in a while but wanted to give you hope. I am so glad that your husband might be able to get a BMT. I hope you have found a wealth of info at the AAMDS.org site as well. They gave our family a lot of strength. Where are you from? NY area? My Dad had MDS and he worked in the city during his career and lived in NJ. I am always curious to gather info on common threads. I want so much to find out more answers on this illness. Feel free to reach out to me at
destwanick@yahoo.com if you ever need strength. Your husband is blessed to have you and 8 siblings to give him strength and courage. My Dad had lots of love and support too. It is so important . . . God Bless you both and keep the HOPE alive. This forum is a wonderful way to connect with other people who's lives have been touched by MDS.