Quote:
Originally Posted by PaulS
Hi Data - are you still in the hospital? How's the GVHD? How frequently are you getting CBC's - and is the morphology consistent in all of them? What does your doctor say - is he concerned? I question I frequently asked was "How worried should I be about...?"
Issues with my blood counts (mostly slow engraftment and a long time for my counts to rise - then falling and low platelets after GVHD) usually worried me more than my doctor - he generally had a relatively benign explanation - or at least a theory as to what was going on - My issues were explained by the nature of my transplant (marrow v peripheral stem cells) GVHD, drugs used to prevent GVHD etc - and eventually things improved -
This can be a scary time in the process - you want everything to be normal and OK - but its not yet - and probably won't be for a while - it takes time and patience. Stay strong and positive!
Best,
p
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Paul,
No I am not in the hospital and longer. They are treating the GVHD in clinic with prednisone and cyclosporine.
II get CBC at every clinic visit (and daily while I was in the hospital). They are pretty consistent. I haven't asked the doc yet. I should.
Cheers
Data
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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