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Thanks for the advice Neil. I did mention it to the nurses and they think it has something to do with injury during the seizures.
We have sorted out a lot of my copper issues. Hydrocortisone before and half way thru then Clarytine an hour prior to and steroid cream post. The rash is substantially better.
My bloods today show Hb still hasn't moved but WCC 3.2 and neuts 1.2 there is a big left shift with lots of bands, metas and myelos along with high NRBCs. How much of this improvement is copper and how much is marginalization due to steroids will take a few days to determine but I feel better than I have in a long time so I don't care about the whys.
The plan from now on is......there is no plan. Basically if I start feeling unwell I will be admitted and do it all again.
Regards
Chirley
Ps my platelets are a little low so the bruising is from tape.
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