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Hi PKumar,
I am sorry that your wife is struggling with this disease. It is encouraging that she had a response in some of her blood lines. Hopefully the platelet line will follow soon!
I would encourage you to use the search function on this forum to read others experiences with Danazol. It was used in a bunch of clinical trials for people with TERC/TERT mutations a few years back. This mutation causes short telomeres. You can follow links in the posts to view the clinical trials and results. The clinical trials also have posted side effects to the drug.
If you have any trouble finding the links, I?m happy to help sort through the information.
I hope this helps!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Last edited by Hopeful : Wed Oct 5, 2022 at 07:35 AM.
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