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Originally Posted by Marlene
You can search for papaya leaf on this site. There were some past discussion on it for platelets. Also look into sesame oil to increase platelets.
If she is holding at 13K without any bleeding, you may want to discuss stopping platelet transfusions with her and her doctor. John was able to stop transfusions at 8K. His clotting times were good. If her clotting times are off, then Vitamin K may help that. Vitamin K is found in leafy greens and vegetables.
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Yes, I agree. My mother's current hematologist will not agree to stop platelets transfusions under 20,000. She is super strict on this. There are some doctors who let you go down to as low as 8 before transfusing It's complicated.
There are patients with ITP disease whose never receive platelets, even when they are basically zero, as platelet transfusions are a waste of time (back to where they were in a few hours or so). There are a subset of ITP patients for whom no treatment works. They have to learn to live with extremely low platelets all the time.
@Pkumar: all the best . Things are still looking up for your dear wife. Keep us informed and please take good care.
PS: Please reconsider Danazol for your wife at some point. Ask the doctor!