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Old Fri Jun 13, 2008, 03:32 AM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi,

I thought I would update you on my latest. I had another blood test this morning and received a phone call from the consultants secretary within 3 hours.

My Hb has dropped from 85, 6 days ago, to 72. My WCC is okay at 2.1 and my platelets are normal as usual at 215. Unfortunately my ESR is still high at 50. I have not developed any sign of infection but the ESR shows that I probably have an infection somewhere.

I have booked in for my regular transfusion for next Thursday which means my Hb will have dropped to 60 something by then. I have to wait until then because it is my next rostered day off work.

Thanks for the advice Birgitta but I think I'll be buying in a lot of chocolate and coffee to keep me going until my transfusion.

Bye Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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