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Hi ! I am a new to the marrow forum as my husband was diagnosed a few weeks ago.
My husband was diagnosed just a cupola weeks ago with MDS. He has been very ill and has had 5 transfusions in the last week and a half. His blood counts and other health issues has complicated getting him stable enough for treatment. He was to start decogen today but his kidneys are not functioning properly. His creatin level is at 3.5 today. Just curious if any one else has experienced these complications. He has been in the hospital for a month except for 5 days and the last time home was here a day before he went back by ambulance. He has been running temps everyday. The plan of treatment is 2 cycles of five days on and 2 days off then I time per month. What can we expect. This is really scary!
Thank you Diana
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