Chirley, I am so glad for your good news, especially about the tablet working. You have dealt with unimaginable setbacks, and deserve a glass of wine now and then.
We count out blessings that Bruce has been stable, and even a little improvement. During his annual consult in Los Angeles in November, the doctor suggested a trial of Procrit, even though his erythropoietin levels are OK.
Before the new regime, he was at a 4 week transfusion schedule, and had been at 3 week cycles at times, with a huge drop in Hgb the last week. One week, his Hgb dropped by nearly 2 points.
He's now had enough 5 week intervals that we can call it a pattern, without the big drops. He's not transfusion free but he feels pretty good most of the time, and that's what it's all about.
His favorite doctor quote continues to be, "You look deceptively healthy."
Sending a hug your way.