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I have intravenous copper sulphate and steroids every day for a week each month as an inpatient. Last year it started out as every 8th week then every 7 th week then 6 weeks then 5 then 4. Now it's 3 in between treatments and I've been told it's only supportive as it doesn't appear to be working on stopping the Neuro progression. At least it fixes the bone marrow failure...my counts are never normal but they are still pretty good considering I used to need blood transfusions every two weeks and lived with hardly a neutrophil for a long time.
I haven't needed a blood transfusion now for about a year and a half.
Oooh, so uncomfortable....eaten too much. I don't even like gherkin dip so why did I have it?
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