Has anyone been diagnosed with both MDS/ MPN
My father has both MDS/MPN diagnosed Oct 1 2013 age 77. He has <5% blast and no spleen enlargement. He is currently taking procrit. He has been accepted to do a trial at MD Anderson in Houston. 15 months of Vidaza and Jakafi. My father is afraid that the medicines may cause a cascade of events that could make him worse off. For instance, Vidaza could cause his counts to go down and start him doing blood transfusions. Can you even wait and watch with MPN? There are so many decisions to make. on the other hand the meds could maybe put him in remission, if there is such a thing. Does anyone have any input on this matter, and did you feel the same way as my father does. Thank you very much.
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Mary, daughter / caregiver of Bob age 77; on Oct 1 2013 dx with MDS/MPN overlap +Trisomy. Jak2 at d< 5 blast. , and on March 1 2014 Dx with AITL non Hodgkin's Lymphoma.
Tx: decitabine/prednisone/Jakafi?
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