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Old Mon Nov 18, 2013, 06:49 AM
gramous gramous is offline
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Join Date: Apr 2012
Location: belgium
Posts: 73
Hallo,

my boyfriend who is 55 y old is also MDS/MPN.... He has a RARS-T, myelodysplastic syndrom with ring sideroblast and thrombocytosis with jak 2 positive assicuated... He's taking 1 hydrea a day for the platelets management.
The MPN aspect is predominent over the MDS aspect... His worst results were hg 8, white 2000, platelets 2300000 in april this year. Since that nature diet and now last blood resulmts this month : hb 13, white 4400, platelets 400000.
We chose of no other treatment than hydrea takern because jakavi has an slide effect over the hemo level in a recent study and has an effect over the spleen size but my boyfriend has a normal spleen's size...
Take care, béné
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boyfriend with RARS-T dx 11/02//dx : hb 11,5; plt 870000, wh : 6500//Before fasting cure (13/04): hb: 8,9; plt 2200000; white:6000//After fasting cure (14/09): hb 12,5; platelets 400000, wh 3000.//Now (15/08) : hb : 11,plt : 650000, wh 3000// hydrea 1c/day and cardioaspirin, 1c/day,age: 56 y.
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