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Old Mon Nov 18, 2013, 08:24 AM
MaryS MaryS is offline
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Join Date: Nov 2013
Location: Herndon VA my father in New Orleans,La
Posts: 24
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Thank you so much for your feedback. I do appreciate all of you.xoxo
Slip up 2- my father did not make it into that trial, however the trial he would be in would measure 10 people, and it would be the same meds, but it would be evaluating the effects for only MDS. They already have 7 people. They need to make a decision. My father is Leary.they will be speaking to their oncologist in New Orleans today to ask questions. As you can imagine, my parents are a bottle of nervous.i think he should try it,even though he doesn't have many symptom now, eventually he will example enlarged spleen. My father worries about quality of life, and as a nurse I can appreciate that. I will update about this as it unfolds.

I appreciate the cancer researchers. They are Hero's ! They are working so hard to help us and make life better. They have come a long way. MD Anderson has been very compassionate to my parents. I value compassion as a Nurse, especially in doctors. A doctor having compassion can make a difference in the way a patient deals with his/her disease.

I am In this with you and value you and your support
__________________
Mary, daughter / caregiver of Bob age 77; on Oct 1 2013 dx with MDS/MPN overlap +Trisomy. Jak2 at d< 5 blast. , and on March 1 2014 Dx with AITL non Hodgkin's Lymphoma.
Tx: decitabine/prednisone/Jakafi?
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