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Old Mon Jan 6, 2014, 05:27 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Dave I hope your visit was good today... Im sure it was one of those hold your breath and we will see over time how things go kind of visits. (which are the ones that make weekly visits feel months apart!!!) I guess wait and see isnt bad news , just makes ya anxious news. Anyway hopefully your visit today was full of good news and your not in wait and see mode.
Hope your pain is easing up! I'll be praying for ya!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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