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I always needed a little prednisone to make the cyclosporine work. It is a balancing act - an art, not a science. I ended up only needing 2.5 mg every other day of the prednisone.
I have only been able to get off of both of those after about four years once they included Danazol in the mix. Now, I only use the Danazol. I could see improvement very slowly after about nine months. Once my Hg got to 11 they started to reduce the dose of cyclo. Nothing with these conditions seems to work quickly.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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