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Well, since the OP is from Pittsburgh, I'm guessing they mean the University of Pittsburgh Medical Center. If your own heme/onc doesn't know anyone there, you could always call the department, ask to speak to an RN, if they let you, and ask them who treats the most MDS patients in the group. They want to get patients to the correct physicians, in my experience. If that doesn't help, you could call the MDS Foundation and speak to the patient advocate. They know the doctors who specialize in MDS, and can steer you in the right direction.
Mags
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Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
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