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First, I am sorry that your father and family are going through this. I actually relapsed 6 months after transplant and went through 6 months of treatment with Vidsza and came back clean on my biopsy. My blood counts didn’t recover to even close to normal numbers for another 9 months.
I think that it is premature to panic, especially since Dacogen can take 6 to 7 cycles to reach peak effectiveness. Concern is unavoidable. The biopsy may add some clarity to the situation and hopefully produces the desired results I am now out 6 years MDS free. I hope the same for your father.
I’ll add him and your family to my good thoughts if that carries any weight for you.
Wishing only the best.
Dan
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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