Thread: Low platelets
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Old Tue Aug 21, 2012, 01:20 PM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
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hansi.s,

RAEB stands for "refractory anemia with excess blasts", which means she has too many immature blood cells (called blasts) and not enough mature blood cells.

If 7.7% was her hematocrit (the percentage of red cells in her blood) then that's extremely low. Her WBC (white blood cell count) was also very low. Her platelets were lower than normal although not as low as many MDS patients.

I'm glad she's getting treatment and hope she has minimal side effects and a positive response soon. The doctors monitor a lot more than blood counts, but blood counts are the most obvious measure for patients and family members to watch. Be prepared though: this disease can be a roller coaster of improvements and setbacks. With MDS drugs, blood counts often get worse at first before they start getting better. It's not a quick fix.

I'm surprised that the doctor avoided you. Sometimes doctors don't take the time they should to talk to family members, but perhaps you'd have better luck if your sister-in-law told her doctor that she wants you to be informed of her status, or if you can join your sister-in-law when she meets with the doctor.
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