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Diagnosed MDS, What should I ask the doctor at the next appointment?
I have just been diagnosed yesterday as MDS , RAEB1, Myeloid 5.6%
The doctor said when it reaches 20 percent then it means leukemia!? (hyaketsubyo)
Here in Tokyo, the MDS patients come in every month for blood tests. So my next appointment is next month.
I have the BMB and DNA etc results. with me, in Japanese, and trying to understand all the medical terms and numbers via google, all the while really tired and scared inside.
What should I ask the doctor next month? My sister suggested asking for an English version so that I could understand the results better. That's the first step.
What does Total Myeloid series 62.8 Total Erythoid series 25.4
M/E 2.47 mean?
Privately, I'm 50 already with an 11 year old daughter who's only focussed on going Back to school, and I feel so helpless, that in all my life I've never joined any forum or even posted on the internet before. Now I think I need all the support I can get. Please help.
Meri
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