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Meri, welcome to this forum. There are many knowledgeable people here. I applaud your effort for more information. It is very important to start immediately to organize everything you receive. MDS seems to be different for each individual. Keep track of your trends in all of the tests you take. The trend is more important than individual results. Some people go for years managing MDS while for others MDS becomes an acute situation.We wish you the very best in results. Let us know as many particulars about your situation such as CBC results and bone marrow biopsy (BMB) results. We all learn from each other's situation.
Yes, you need all results in English. Start thinking/asking about a long term plan. MDS is no bargain when compared with leukemia.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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