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Old Tue Aug 23, 2016, 02:13 PM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Meri,

Your diagnosis is myelodysplastic syndromes with excess blasts (level 1, not level 2) using the widely used World Health Organization classification system. That means that the immature white cells known as blasts have been measured as 5% to 9%, rather than the normal range of 0% to 4%. If it was 10% to 19% blasts that would be called RAEB-2, and 20% or more would be called acute myelogenous leukemia (AML). The goal is to keep the blast count as low as possible.

Here are some suggested questions to ask. If there's a communication problem, perhaps you can bring in your questions on paper and leave them with the medical team, even if they can't answer them all on the spot.

I'd definitely ask what your risk level is on one of the commonly used scales, e.g., low risk, intermediate risk, or high risk. That gives you an idea how likely it is that you'll need to start some kind of treatment. You could also ask what the DNA results indicate, again whether it's a low risk or high risk result.

If you look at a diagram like this you'll see how blood cells are formed in the bone marrow. As I understand it, your lab test is indicating that among your bone marrow cells, 62.8% are in the myeloid part of the tree (which applies to all types of blood cells), and 25.4% are in the erythrocyte part (which is just for red blood cells). The radio of 62.8 to 25.4 (you just divide the two numbers) is 2.47, which is in the normal M/E range of 2 to 4, so that's good news. See here for a few more details.

Learning more about this disease will lead you to more questions for which you can seek answers. That's good, because knowledge is power when it comes to taking care of yourself and your family.
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