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Old Sun May 15, 2022, 03:13 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Sorry it's taken so long for me to respond. It may or may not be related to your treatment. In any case it needs to be addressed. I hope you will pursue it and see if you can find a reason for the pain. It can be related to circulation issues or even compression issues on the nerves from the swelling. John too had lots of swelling in his legs and feet. It's never fully resolved and they were never too interested in pursuing it. There are many things that can cause foot pain. It can be as simple as something structural where a chiropractor or osteopath can help. Foot and knee pain can come from a mis-aligned back. Nutritional issues can also contribute to it. It's complex and should not be ignored especially if it's progressing. Resolving it involved a lot of trial and error on our part. Somethings helped while others had no effect.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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