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I can empathize with your situation. I just find it perplexing that the medical people he has contact with are so casual about RAEB-2. I'm not sure how they could even make the diagnosis without a BMB? My doctors wouldn't have let me out of the room if they had a "dry tap". They would have gone to the other hip and tried again. I will have my 18th BMB in a couple of weeks. A couple of times they have had to go back in to get a better bone core. They also told me that I would be lucky to live more than 7-8 months without intervention.
What is your husbands peripheral blast count from his blood tests? You said, "No one has ever suggested he have another biopsy" after the two failed biopsies. I would suggest that the people he is seeing don't have a clue about MDS (especially RAEB-2) and AML.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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