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D+127
Had my sixteenth outpatient visit to the hospital for eval and review of my 100ish day BMB...
Dr. confirmed my 100% donor cells again, anti-bodies are almost there, but not 100%
WBC's were at 6.1 this morning (4-11 K/mcL is Normal Range)....
ANC were 4.8 K/mcL today Normal Range is 1.5-8.8 K/mcL...
HGB at 12.4 and PLT's up slightly to 157...
Red Blood Cell (RBC) Count was 4.06 M/mcL (4.2-5.6 M/mcL is Normal Range)
Creatinine was unchanged at 1.2, Potassium 4.1 and sodium at 142...
ALT-Alanine aminotransferase down slightly to 35 Units/L (Normal Range is 5-37 Units/L) and determines Liver distress...
Feeling pretty good, walking 1.5 miles every other day, doing 100 push-ups again (5 sets x 20), muscle mass and appetite are both back....
No longer on anti-fungal (Noxafil) since my antibodies were high enough Dr. said I don't need to it take anymore...
Haven't posted to this thread in a while, but I had two other visits in between 1/31/2014 and today...
2/11/2014 to meet with the survivorship clinic and 16 vials of blood drawn (various 100 day blood tests/blood studies)
2/21/2014 for Lung function test (came back better than before my BMT) and for pantamodine lung treatment (pneumonia preventative)
What I thought to be neuropathy in my legs and right arm, ended up being a pinched nerve in my neck... every time I look at my toes, I get a shooting nerve in both feet from my waist to my toes, and in my right arm... I've been going to the chiro twice a week for the last two weeks, and it's helped a bit... (I've known my chiro for 28 years, and have seen him on and off the entire time, he's been great)...
God Bless, and best to all...
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
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