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Julie,
I think you will soon find out that it is necessary to be proactive. At the same time you will quickly learn that there are very few (if any) absolutes with MDS and that makes it difficult for Drs. as well as patients.
p.s. Stay cool painting the house. I have daughters in Fayetteville connected to Ft. Bragg and I know it is hot. You can thank husband for me for his service in Vietnam. I was in Chu Lai AO.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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