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Hi,
I had a SCT on May 25, 2010 and relapsed the following January. I was told I had three weeks to maybe a few years to live. I started IV Vidaza in Febuary 2011 and will begin my 26th cycle on Monday. I started out every 4 weeks and they had to move it out to 6 because my counts were not recovering fast enough. It's been 3.3 years and as you can see by my counts I'm doing good. It took until about cycle 14 to start working for me and it was a little rough going, but everyone is different. I have been transfusion free for almost two years! I just had a BMB on Friday to see if I am still 100% donor. If not, my hematologist talked about this procedure of infusing stem cells to help boost production. We are just waiting on the results. Keeping my fingers crossed! A second transplant is just too risky according to my transplant doctor. Best wishes to you and your husband!
Jill
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58  , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
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