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I remember how it felt when my father was diagnosed with MDS. Its feels like SHTF, and all is immediately over. Just hang in there, and best way to deal with a love one having MDS is educating yourself.
My father got prescribed Revlimid for his first medicine when he was diagnosed with MDS-MF. and it was like 10k a month drug, but there are assistance from the revlimid company pay for it. Look into ssi disability if you need it. I will be able to enroll my father into medicare next year due to his age.
God Bless
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