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MDS
I have had MDS for 10 years.The only number I pay attention to is my CRT, that determines when I need a transfusion. I have had 387 units. They only advise I can give is don't let it rule you life, worring never cured anything.I know it can be hard but you have to ignore it. I get so tired I can't walk a hundred feet without needing to sit down, but I keep on going.DON"T LET IT GET YOU DOWN, DON"t LET IT RULE YOUR LIFE
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 82  yr. old male. Diagnosed in 2003. Started Blood infusion 1/5/2004, average of 2 units every 2 weeks. Inject Procrit weekly 40,000 ML. I have had 344 units of PRC . E Mail leojean@comcast.net
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