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Old Wed Mar 25, 2015, 11:55 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Thank you Chirley. I should be able to try this in May as we will be away for a couple of weeks and I can just put off the infusion till we get back - that will put me 3 weeks over.

Just lost all of a long response to your frustrations so this will be briefer since I have in-laws arriving soon.

I think my best advice re getting out of the bedlam (which I totally resonate with - can't stand noisy inane conversations, and privacy is vital to me too) is if you can afford to go to a health retreat. They are usually pretty switched on with people's need for quiet and privacy. I know of three but none are in Queensland. They are:

Cedarvale - http://cedarvaleretreat.com.au/ (I know the GP there - he's very caring)
Highwood - http://www.highwoodhealth.org/ (Have visited and eaten there - the food was excellent, but then I am vegetarian). They have a GP attached.
Misty Mountain - http://www.mmh.com.au/ (Have watched their health dvd's)

This is the best option I can think of, my friend. My first thought was you should buy a small campervan and take off, but I imagine that would be too hard for you.

I'm praying that you will be able to work out a solution to these difficulties, Chirley.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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