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Old Wed Jul 14, 2010, 08:58 PM
Lisa Z Lisa Z is offline
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Join Date: Nov 2008
Location: Ft. Washington, PA (Philadelphia area)
Posts: 111
elrojo

It is imperative that you get as much info as you can. And, as anohter person said, go to the experts!! Make sure you do this. YOu need to get a diagnosis so it can be treated correctly. IN the Fall of '07 my doctor found, during routine physical, low red, white and platelet counts. I was initially diagnosed with AA, then MDS. I did a clinical trial at the NIH with campath and have been OK for over a year. My counts are not normal, but they are good enough for me to lead a normal life. You need to be your best advocate and make sure your docs find out what it is you have. Be persistant!
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