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Scott I hope you still read here. I was searching for information on end of life stuff for my Dad. You and your family have truely been an inspiration to me and many others here I am sure. I don't know how you have managed to get thru all this. I am so glad your mom is doing stuff on her own and seems to be doing ok. I hope I have even half as much courage to get thru this myself.
Dad was diagnosed in April this year with mds. it has been a long battle.
I think my Dad's transfusions have stopped working. I am watching him grow weaker all the time. This week he told us as a family he feels his body has changed.
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