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Old Fri Jul 4, 2014, 01:22 AM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
When do we pull the plug?

My treatment was stopped after three doses this time. I asked my doctor at what stage we reach the end point in treatment and he said that I have already pulled through an episode of being haemodynamically unstable due to an allergy to copper so it's just a case of keep on going until I get a lethal reaction.

I'm posting a photo of my current reaction. I have some on my back I can't photograph but have blistered. My blood tests have also started showing renal impairment with raised creatinine and lowered eGFR. My arms and legs have numerous welts like this some of which blister and some which don't but they all burn and itch. Once I have them they never go away completely. I get asked all the time why I have so many bruises. I guess I'm asking if anyone else thinks that I'm being silly thinking that my future treatment options are limited.
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