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AmyAngel,
There are a number of us who are working through our first year and beyond on the forums. There is hope. The journey is sometimes (maybe even frequently) difficult. Transplant is not a guarantee, but a best option among a few when it makes sense.
I wish you and your daughter the very best. I am one of the fortunate ones to have found a good number of unrelated donors on the registry and had my transplant on 2/26.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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