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Hi Chirley,
Yes my daughter has had an enlarged spleen sense 2006 and now that we have done vidaza the Doctors don't think so much anymore .
Amy Hematologist told me that when your young and you do vidaza your bone marrow seem to ache more than that of someone older .. Young active bone marrow Older not so much . Her bone marrow is fighting hard to come back and that's why the pains and aches .
Oh we have been addressing her gallbladder sense Feb. 2014 which they place a billy drain bag in her belly . Tues. we are going to get it out . Praise God Amy started making some white cells and neutrophil !!!
Sue and Amy
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Mother of a daughter 27 with MDS . Cognitively delayed at birth 1987 , seizures 5 days old . pancytopenia 2006, AIHA 2013, EVANS 2013 , CVID 2013, ALPS 2014. MDS 2014
8/18/2014
WBC .3 , hemoglobin 7.3 , hematocrit 2, platelets 60 , neutrophil .21 Mag 1.6, Potassium 4.6
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