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Mary.... this is a very interesting & important trial....using the combination....my late husband was diagnosed with both the MDS first then MPN added....Jakafi was only just approved in Canada, and we were too far along in the disease to use the drug.
The Vidaza might pull his counts down for the first few months then if the Vidaza is working they will level out & become what we might consider (normal). The Vidaza worked for us for about 9 months & that is considered normal...some it works for longer & some not at all.
If the combination of the both drugs work that would be fantastic....the MPN is very painful when the spleen enlarges, we tried radiation on the spleen, it worked for a bit to shrink the spleen, then started to enlarge again.
Mary, one thing i would like to say about this trials they are not always perfect......because of trials we have many new drugs that have helped people live longer.
Tell your Dad all the best none of it is an easy decision & the one he makes will be the right one for him.
kate
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