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Donna
Thank you for the kind and positive thoughts - we are holding onto hope and today's visit gave us a little more hope. He has two sibling that are a match and hopefully today's BMB will be encouraging - the doctor seemed to think the results should be good based on his recent counts. We'll know the results late this week and if all goes well, then they'll set up an appointment with the transplant doctor.
We are in central NJ, near Princeton, the docs recommended either Sloan or U Penn for treatment. Next week he starts the third round of decitabine and tretinoin and once again will be staying at Hope Lodge in NYC for the week.
We have many people to thank, especially those who took a chance with new treatments and transplants.
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Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
Last edited by Debbie W : Tue Jul 13, 2010 at 11:20 PM.
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