Thanks Sarah. It helps to know that others get these swings and that this is a whacko disease, as you so eloquently put it
I really dislike focusing on all these things as they interfere with my enjoyment of life but find myself second-guessing each little "symptom" such as indigestion, headaches etc. and wondering what could be happening.
I have "joined"
www.inspire.ca an integrated health centre for cancer patients where the focus is on wellness and where the MD's work as team members with the surgeons etc. I like that they encourage me to focus on my HEALTHY bone marrow cells etc. However, each time I get a changed (worse) blood result, it takes me down the road where I feel helpless again.
The rain has stopped for a while, so I think I will go for a walk with my dog and try to focus on the moment. Thanks again.