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New PNH diagnosis
Good morning.
I was referred to haematology in October, 65% PNH clone, referred to Leeds. I had a phone assessment on Monday and I'm attending for bone marrow, echo and other blood tests this Friday.
They have been lovely as regards patient care.
I'm a bit jumpy in myself, I'll be glad when we're into the treatment phase.
Thanks for reading. I've found forums like this very helpful over the years.
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Andy, 68, retired GP, husband of Charlotte for 45y. MDS diagnosed 2001, treated with daclizumab in 2004. Now dveloped into PNH.
Last edited by Andy S : Sun Feb 20, 2022 at 04:31 AM.
Reason: Duplicated info
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