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Hi Chirley from Mt Hagen in PNG. We're over half way through our volunteer stint. The usual vicissitudes of a third world environment but getting lots of work done. Hard to know how much will be achieved - they are really keen on introducing voc ed to assist kids leaving school to get jobs but there are road-blocks too such as classes of 60-70 kids so their workload is already huge without something new being added. Working with deeply committed great people.
So sorry to hear of your apparent decline at present. Thinking of and praying for you. I hope your onc has a brilliant idea to get you back to independent living again! Enjoy your flights into the world of imagination - those beautiful places you like to visualise as you rest.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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