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Hi Whiz. Shocked and sorry to hear about your recent episodes and subsequent forced reversion back to chemo. I will pray for you.
Re the reaction to IVIG infusions.... I have them every 4 weeks. The only time I've had a weird reaction was when the nurses ran it too fast. My blood pressure went up to 180 (normally around 95-105) and I had pre-migraine-like circles rotating around in front of me and lost my vision of anything else. Was on the point of fainting when I managed to attract the nurses' attention. Anything over 240 drops per min is too fast as it's a viscous fluid. I have 15 min on 60 dpm, then 15 min on 120 dpm, then it goes up to 240 dpm if there are no problems. I'm wondering what your regime for IVIG was?
Occasionally I have a minor headache the next day but usually not.
All the very best as you fight the battle again.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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