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Old Thu May 12, 2022, 12:06 AM
Shroob Shroob is offline
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Join Date: Mar 2022
Location: Idaho
Posts: 16
Quote:
Originally Posted by Hopeful View Post
Wow - I'm really saddened and surprised to read this. I've heard that some hospitals are overloaded because people were delaying care during the height of COVID.

Weekly transfusions are never a good thing.

Have you considered consulting with Dr Young at the NIH in parallel with the wait?
Definitely understandable. Who knows when we'll actually be out of the crazy times, if ever.

I believe the doctor at Utah consulted with Dr. Young, but that visit was also very inconclusive. We haven't spoken with him ourselves though, besides the email I sent his team several months ago out of desperation (and understandably got no response from).
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Shroob, Daughter of Donna (age 59); diagnosed AA end of 2021; currently taking prednisone & tacrolimus. Polycystic Kidney Disease; received kidney transplant 2014.
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