|
So sorry
So sorry for your relapse. I log onto this site occasionally. It makes me feel closer to Dave reading all of his positive encouragement he gave everyone, even when things were not going well for him. MDS is a very crazy disease. Dave was doing amazing for 8 months, then bam!! Counts dropped then transformed to AML. The more I read about the common relapse rate, the more I wish we were a little more prepared. Our doc kept saying the 100 day mark was crucial. We kept thinking if we could just make it past that, we are in the clear. Dave too 100% donor. I guess it doesn't mean what we think. Good luck. I really hope chemo will work for you to get this relapse under control. Donna (Dave's wife)
__________________
Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
|