Sorry to hear that bailie.
I'm attaching a link to an abstract about my particular chromosome deletion but it really refers more to CML. I have del15q but I don't have the t9:22 or del22 so I'm really unusual. My deletion was found in 2010 and the Vidaza was stopped due to non response and I've only been having copper replacement since then. I've not had a BMB since Feb 2011. My counts have been okay but are only now just starting to trend down. Anyway the article might be interesting.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4167428/