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Post BMT
Thank you to all for sharing. My husband, 54 is about six months post BMT from donor. He has had four rounds of Vidaza since BMB at 30 days showed cancer cells. We're awaiting results of new biopsy. He has had skin problems. Dermatologist diagnosed follicuitis at Friday appointment. We're wondering if it's from GVHD or a side effect of Vidaza? He couldn't tolerate tacromilus (made him certifiably crazy) so he's on siromilus. His face worsened after his dosage was reduced from 2mg to 1.5 mg. We obviously don't know if he'll be cured, but I have read that mild GVHD helps kill the cancer. (Doctor at University of Florida specializes in using GVHD to kill blood cancer.) We have befriended a gentleman, 71, who had a BMT for AML 11 years ago. There are success stories and even if we only get another 10 years, we'll feel mighty blessed.
Janet
Dennis diagnosed with MDS RAEB II in August 2014; allogenic bmt in February. All his counts were very low prior to diagnosis. Multiple blood transplants prior to BMT. One since transplant.
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Janet B.
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