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Promacta:indications and response
Hi Suz,
My husband (diagnosed severe AA April 2012 - one ATG 2012 but no significant response) had a very good response to Promacta (Revoldade here in Europe, where we are) in all three bloodlines. Indicated usually for low platelets but apparently can have a positive effect on all bloodlines in the best scenario. He first had a significant response when on maximum dosage Promacta and then stayed on this dosage for well over a year. Recently they tapered the dosage and then end of Sep. he stopped Revolade completely. Thankfully so far so good and counts have held. He still takes Ciclosporin but they plan to try to taper that off in the New Year.
NIH have up to date info. on Promacta trials, findings etc - apparently some people in the trials have had a very good response to it - also in all 3 bloodlines.
Wish you all the very best and hope things go well for you.
Sue H.
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