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Oh Chirley - so sad to hear of your latest episode. That's miserable. I hope your tube starts working really well now so you can get some good nutrition.
Disappointing about the retreats - I thought there might be some which allow people just to be quiet and peaceful in a beautiful environment, with expert help available if needed. I can understand you wouldn't want to travel too far. Hmmm... back to the drawing board?
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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