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Old Fri Oct 24, 2014, 04:08 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
I had a mini-transplant in Dec 2011 for PNH. Up to that point I had no Soliris, no treatments or transfusions, only blood thinners and supplmnts. I had abt 1/3 of the chemo and radiation than that of a standard transplant. I certainly felt sick for abt 3-4 days, but not that bad. More dizzy than anything. Your sense of taste and smell will be dodgy for a while afterwards. Even bottled water and toothpaste tasted/smelled bad. The anti nausea meds worked pretty well for me. I was never diagnosed until abt 7 mos b4 my trans, so I was super tired and fatigued for a very long time. I was so sick and tired of being sick and tired, I was excited abt the whole thing. Obviously I was worried as well, but I did my best to remain calm. Med tech is pretty good, and everything that I have gone through/ continue to go through is much better than the alternative. Good Luck
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