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MDS
Hi pleasant1911,
You know when I got the dx MF 2006 I looked at the tables and found that because of my age and test results the median time for me was 26 months. I thought that I had lived a good life and been very healthy - never a day off due to disease.
My disease is a "project" and I spend 2 hours a day at my pc looking for news about drugs and other kind of "treatments" like trying to not increase iron overload by not eating red meat, avoid infections and so on.
Then I have a young optimistic doctor - a specialist in MDS - and a wonderful team a the day care unit where I have received 186 units of blood, iron chelation (Desferal) and treatment for complications like infections, DVT etcetera.
You are giving your dad very valuable help by trying to understand his disease and choosing the best possible treatment.
Kind rtegards
Birgitta-A
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